MPN-10 自我監察
MPN-10 自我監察
MPN-10症狀評估表是一個快速而有效的自我評估工具,能協助患者自行監察病情。在下次覆診前,使用本評估工具記錄以下任何症狀的改變,方便醫生跟進。²²
疲勞 | 廣泛性骨頭疼痛 |
夜間盜汗 | 活動力欠佳 |
容易有飽腹感 | 體溫超過37.8℃ |
搔癢 | 注意力下降 |
腹部不適 | 過去6個月非刻意的體重減輕 |
MPN症狀評估表連結 : 請按此
會見醫生時,帶備症狀評估及準備好的問題和筆記本,以便記下答案。此外,可考慮邀請家人或朋友陪伴你一起會見醫生,這能給予你精神上的支持。他們更可協助你抄錄筆記或發問一些你沒有想到的問題。
為甚麼要追蹤症狀?
· 症狀會隨着患者的個體差異和嚴重程度而異
· 症狀會隨着時間,對生活質素的影響越來越大
· 持續跟進並與醫療團隊溝通,有助提升治療質素
· 提升患者參與度,加強醫患合作
參考資料:
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- Song MK, et al. Understanding Splenomegaly in Myelofibrosis: Association with Molecular Pathogenesis. Int J Mol Sci. 2018;19(3):898.
- Myelofibrosis. Cleveland Clinic. Available at: https://my.clevelandclinic.org/health/diseases/15672-myelofibrosis. Accessed 4 March 2022.
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- Stein BL et al. Polycythemia vera disease burden: contributing factors, impact on quality of life, and emerging treatment options. Ann hematol. 2014; 93: 1965-1976.
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- Leukaemia Care. Myelofibrosis. A Guide for Patients. Version 4. Printed October 2022.
- Erythropoietin-Stimulating Agents. Cleveland Clinic. Available at: https://my.clevelandclinic.org/health/drugs/14573-erythropoietin-stimulating-agents. Accessed 20 Jun 2022.
- Healthy Lifestyle Habits For A Better Quality Of Life. Leukemia & Lymphoma Society. Available at: https://www.lls.org/sites/default/files/National/USA/Pdf/Publications/FF7_Healthy_Behaviors.pdf. Accessed 7 February 2022.
- Follow-up Care And Survivorship. Leukemia & Lymphoma Society. Available at: https://www.lls.org/treatment/follow-care-and-survivorship. Accessed 7 February 2022.
- Staying Healthy through Diet and Physical Activity. Children’s Oncology Group. Available at: http://www.survivorshipguidelines.org/pdf/healthlinks/English/diet_and_physical_activity_Eng.pdf. Accessed 7 February 2022.
- Nutrition recommendations for MPN patients. Scherber RS et al. MPN Quality of Life Study Group. Available at https://www.mpnresearchfoundation.org/wp-content/uploads/2021/04/Nutr-Recs-for-MPNs_FINAL_12-4-19.pdf. Accessed 20 June 2022.
- Coping With Myelofibrosis. Cancer Care. Available at: https://www.cancercare.org/publications/197-coping_with_myelofibrosis. Accessed 7 February 2022.
- What Does It Mean To Be ‘Immunocompromised’?. Yale Medicine. Available at: https://www.yalemedicine.org/news/what-does-immunocompromised-mean. Accessed 7 February 2022.
- Prevention & Control ‒ Immunocompromised Persons. Centers for Disease Control and Prevention. Available at: https://www.cdc.gov/parasites/crypto/gen_info/prevent_ic.html. Accessed 7 February 2022.
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- Emanuel RM, et al. Myeloproliferative neoplasm (MPN) symptom assessment form total symptom score: prospective international assessment of an abbreviated symptom burden scoring system among patients with MPNs. J Clin Oncol. 2012;20;30(33):4098-103.
- Emanuel RM, et al. Myeloproliferative neoplasm (MPN) symptom assessment form total symptom score: prospective international assessment of an abbreviated symptom burden scoring system among patients with MPNs. J Clin Oncol. 2012;20;30(33) (supple 1):4098-103.