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40歲三次罹癌 她用盡最後生命替癌友奔波
07/10/2017

文/柯弦 責任編輯:蘇明真

 


康妮在安寧療護病房。(截自愛你的姊妹臉書)

康妮在安寧療護病房。(截自愛你的姊妹臉書)

 

 

一隻奶白色的毛茸茸的羊駝,被一位帥氣大叔牽進病房。羊駝憨憨地湊到病床前,垂頭親吻病人的臉頰。病人伸出手,抓了抓它頸部的絨毛。

在安寧療護病房裡,這溫暖的一幕永遠被相機記錄下來。

 

40歲就得過三次癌症、與乳癌抗戰七年澳洲慈善家康妮·約翰遜(Connie Johnson),在生命最後的日子裡,選擇轉入安寧療護病房,積極面對告別的旅程。

剛當上年輕媽媽 被告知再次罹癌

康妮並不漫長的一生中,卻三次罹患癌症。11歲的時候,她腿部的骨頭裡長出了惡性腫瘤,但是她堅強地挺了過來,成功消滅了癌細胞;20多歲時,她好不容易懷上了孩子,卻再次被診斷出子宮癌。可她還是擊敗了癌症,還生了兩個可愛的兒子;33歲時,她的兩個兒子分別才3歲和4歲,她正沉浸在當媽媽的快樂之中,醫生卻告訴她,她再次患上了癌症。

她得了乳癌,已經擴散到周圍的多處器官。這一次,康妮沒有那麼幸運。醫生說,她活不過一年。

但如果康妮就此消沉,就不是成功抗癌兩次的「抗癌鬥士」康妮了。她用盡所有氣力,面對這第三個找上她的癌症。

康妮創立了「愛你的姊妹(Love Your Sister)」慈善機構。她要提醒每一個和她一樣的年輕澳洲媽媽,儘早去做乳癌檢測,並設下目標:為乳癌研究籌集1,000萬美元!她的弟弟,金洛基獎(Gold Logie)2017年最受歡迎的電視名人、名演員塞繆爾·約翰遜(Samuel Johnson),被她「扔」上了獨輪車,向每一位澳洲女性宣傳乳癌檢測,並籌集乳癌研究的基金。於是,塞繆爾「被迫」騎獨輪車一萬六千公里,繞行澳大利亞一圈,不僅破了紀錄,還籌集了近150萬美元。

塞繆爾和她一起經營「愛你的姊妹」臉書,不停歇地為乳癌募款。在弟弟塞繆爾、丈夫麥克和兩個兒子的陪伴下,康妮撐過了七年。直到所有的治療對她再也不起作用,反而對她身體的副作用越來越嚴重。她意識到,這一時刻終於不可避免地到來。康妮做出重大的決定:停止治療,轉入安寧療護病房。

積極的告別,好過被動地活著

不肯被癌症病痛牽著走的她,決定「積極面對死亡」。

正如一名癌友的妻子在她和塞繆爾「愛你的姊妹」的臉書上留言:「積極的告別,好過被動地活著。」

安寧病房的日子裡,康妮努力把每一天活得精采。她繼續著各種募捐活動,繼續為其他乳癌病友的生命奔波。在許多個安靜的夜晚,她會拿出一大盒顏色齊全的彩色鉛筆,給填色繪本上色,並且把上好顏色的紙卡做成明信片售賣募款。

彩繪
康妮在為募捐做塗色。(截自愛你的姊妹IG

康妮盡她所能地陪伴著孩子。她和兒子在安寧病房裡玩大富翁,棋盤鋪在鄰床上,旁邊擺了一排遊戲紙幣。康妮懷裡抱著晚餐的雞肉蔬菜湯,跟兒子戰得津津有味、如火如荼。

在兒子第二次贏得停車場的時候,年幼的他忽然拿起贏到的遊戲幣,有點猶豫地遞給她:「媽媽,這是妳需要的錢……」

看到兒子把自己奔忙募款的事印在了心裡,康妮深受觸動,又對一直照顧著兩個孩子的丈夫無比感恩。

兒子和康妮
康妮和兒子在安寧病房玩大富翁。(截自愛你的姊妹臉書

康妮還接受了有趣的「羊駝療法」——通過接觸性情溫順的羊駝,減輕心理上的壓力和疲勞。塞繆爾牽著乳白色毛茸茸的羊駝「大力士」來到她的安寧病房。大力士是這個安寧療護院的「貴賓」,它腳上登著時髦的防滑小靴子,一雙濕潤的眸子和憨厚的長相安撫了許多臨終病人。看到康妮,大力士湊到她跟前,垂下漆黑溫和的雙眼,親吻康妮的臉頰。康妮也伸出手來,抓揉著大力士脖子上的絨毛。

20157495_1437085169719827_5880288854522982328_o
康妮在安寧病房接受「羊駝療法」。(截自愛你的姊妹臉書

在人生最後的十幾日,康妮逐漸失去了行走能力,肝的腫脹讓她難以呼吸,腹部的水腫讓坐起來的動作都變得困難,吃東西也成了例行公事,毫無享用美食的樂趣。儘管如此,她還是努力樂觀面對:「我還有我的頭腦,在那裡沒有癌細胞。我還有可以擁抱孩子們的雙臂,還有能看得見朋友們的雙眼,還有聽得見令人愉悅的對話與音樂的聽覺。每一天,我都有幾個小時可以做手工。」

她歎道:「我感覺太快樂了!」

康妮在安寧病房,度過了充滿愛與平和的幾個月。她在電話裡對弟弟說,面對死亡是她遇到最難的事。但是她在努力樂觀地度過每一天。她的弟弟在臉書上寫道:「她得到了極盡可能的舒適,被照顧得非常好。」

在9月8日,康妮過世的那一天,她為乳癌研究募款到600萬美元。

塞繆爾在臉書的悼念文中寫道:我們在今天失去了康妮。

——她走得很充實,很優雅。

http://www.epochtimes.com/

 

 

 

Connie Johnson's husband Mike leads hundreds of well-wishers at memorial service for the cancer campaigner two weeks after her tragic death - as brother Samuel says it will be a 'belter' celebration of her life

 

  • Connie Johnson's public memorial to be held in Melbourne on Saturday
  • The memorial will start at 4.15pm at St Paul's Cathedral and be live streamed
  • It will be live streamed over social media and in Federation Square
  • Her brother and fellow cancer crusader has teased a great 'lineup' for the day 

 

A public memorial will be held for cancer crusader and Love Your Sister founder Connie Johnson on Saturday, two weeks after the mother-of-two lost her fight with the devastating disease.

Her brother, actor Sam Johnson, organised the service and says he hopes it will be 'perfect' revealing Connie's husband will speak alongside The Project host Carrie Bickmore. 

The service which will be live streamed across social media and in Melbourne's Federation Square is to be held in St Paul's Cathedral from 4.15pm. 

'It's going to be an absolute belter. I was tasked with this service personally and I will not f**k it up,'Samuel posted on Facebook.

 

A public memorial will be held for cancer crusader and Love Your Sister founder Connie Johnson on Saturday

A public memorial will be held for cancer crusader and Love Your Sister founder Connie Johnson on Saturday

The mother-of-two, pictured here with her young sons, died after fighting breast cancer for five years

The mother-of-two, pictured here with her young sons, died after fighting breast cancer for five years

She fought hard in the public eye raising money towards finding a cure for the disease

Her brother has now promised to continue the work the pair started and says he won't go back to work until the charity has raised $10million towards 'cancer vanquishment'.

The 'lineup' at the memorial service is going to be 'exceptional' according to Sam.

Connie's husband Mike Johnson pictured arriving to the public service

Connie's husband Mike Johnson pictured arriving to the public service

Sam Johnson organised the memorial - and wanted it to be perfect for his sister

Sam Johnson organised the memorial - and wanted it to be perfect for his sister

A selection of Connie's closest family and friends were revealed to be speaking

A selection of Connie's closest family and friends were revealed to be speaking

The 'Johnson' village and the Love Your Sister village are set to come together
 
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